Affiliati

Barth Syndrome Foundation

2005 Palmer Avenue #1033
Larchmont, NY 10538
Toll free: 855-622-2784
Local line: 914-303-6323
Family Services and Advocacy: Shelley Bowen
Telephone 855-662-2784
www.barthsyndrome.org
Barth Syndrome UK
Charity #: 1181830
Primary Contact: Michaela Damin, Chief Executive
1 The Vikings Romsey Hampshire S051 5RG - United Kingdom
Telephone: +44 1794 518 785
www.barthsyndrome.org.uk
Barth Syndrome Foundation Canada
Charity #: 86102 2002 RR0001 Primary Contact: Susan Hone, President
162 Guelph Street, Suite 115 Georgetown, ON L7G 5X7 - Canada
Telephone: 1-888-732-9458 or 905-873-2391
www.barthsyndrome.ca
Association Syndrome de Barth France
Charity #: 533 127 759
Primary Contact: Florence Mannes
13 rue de la Terrasse 92150 Suresnes - France
Telephone: +33 6 15 58 02 32
www.syndromedebarth.fr
Associazione Barth Italia
Primary Contact: Paola Cazzaniga
Email: Info@barthitalia.org
Piazza Carrobiolo 5, 20900 Monza - Italy
Telephone: +393391117252
www.barthitalia.org